Your stories
What people say about Hemlibra
When Hemlibra was taken regularly, people reported having less bleeds that needed treatment with factor VIII replacement therapy. Many people did not have any bleeds that needed treatment.1,2
REMEMBER, not everyone is the same. Make sure you know what to do if you think you are having a bleed while taking Hemlibra
Max and his grandad Bill have haemophilia A
Max is an 11 year old boy diagnosed with severe haemophilia A, living with his parents Lucie and Dave, and his younger sister Rose. He is an active youngster, playing club football, and is an avid skateboarder.
Max’s grandfather, 79 year old Bill, also has haemophilia A and describes how his childhood differed significantly from Max’s, with the limited availability of treatments.
STORY
Watch Max and Bill’s story, where they describe living with haemophilia A and share their experience with Hemlibra and the impact the treatment has had on their lives.
“It helps me a lot so I can play football and everything that I like. I can do everything that I want to do.”
“It doesn’t have to go into a vein so I can just do it in my tummy or my leg. It’s a really quick jab.”
STORY
Watch Tisha and Peter share their experience with Hemlibra and how it has impacted them as a family, as well as their hopes for the future for Reuben.
Reuben has haemophilia A
Tisha and Peter’s youngest son, 10-month old son Reuben, was diagnosed with severe haemophilia A at 8 weeks old and initiated Hemlibra treatment at the Evelina Hospital in London.
Tisha, describes Reuben’s journey to diagnosis, uncovering that she is a carrier and also that she has haemophila A, a fact that came as a surprise to her.
“It has been really easy to administer. We are able to do the injections at home and it has become part of our routine and life, which is great.”
“It has meant that Reuben has had the kind of baby experiences that I would want him to have.”
“He’s starting to pull up and stand up now. And of course, that comes with toppling over, and it’s made me feel so reassured that I don’t need to be really worried about all those things I would want him to have as part of normal, being a baby and playing with his brother and his cousins. We feel very grateful for that.”
