HOME
HOME
This site has been developed by Roche
Products Limited and Chugai Pharma UK Ltd

ADVENTURES IN haemophilia A

Information and resources for people with haemophilia A (congenital factor VIII deficiency) with inhibitors to factor VIII who have been prescribed Hemlibra® (emicizumab)
WHAT IS HAEMOPHILIA A?

Your stories

Tisha and Peter’s son, 10-month old Reuben, was diagnosed with severe haemophilia A at 8 weeks old and prescribed Hemlibra.

Watch Tisha and Peter share their experience with Hemlibra and how it has impacted them as a family, as well as their hopes for the future for Reuben.

Your stories
Opinions expressed in this video are based on the personal experience of the patient and/or caregiver. Your own treatment experience may differ. Always follow advice from your haemophilia care team and speak to them about questions or concerns you may have regarding your health and treatment or that of a dependent in your care.
Opinions expressed in this video are based on the personal experience of the patient and/or caregiver. Your own treatment experience may differ. Always follow advice from your haemophilia care team and speak to them about questions or concerns you may have regarding your health and treatment or that of a dependent in your care.

Your stories

Max is an 11 year old boy with severe haemophilia A. His grandfather Bill also has haemophilia A and describes how his childhood differed significantly from Max’s.

Watch Max and Bill’s story, where they describe living with haemophilia A and share their experience with Hemlibra and the impact the treatment has had on their lives.

Your stories

Your guide to Hemlibra

You have been prescribed Hemlibra to help manage your haemophilia A, because you have inhibitors to factor VIII.

On this website, we’ll go on a quest to collect the information you need to know about taking Hemlibra.

HOW DOES HEMLIBRA WORK?

Haemoquest

Starting a treatment for haemophilia A can be exciting but it might be confusing to begin with. HaemoQuest will help you learn more about Hemlibra so that you can get the most out of your treatment.

Hemlibra is not a cure for your haemophilia A but, when it is taken regularly, Hemlibra might reduce the number of bleeds you have.1,2

taking HEMLIBRA
References: 1. Mahlangu J, et al. N Engl J Med. 2018;379:811-822; 2. Negrier C, et al. Lancet Haematol 2023. Mar;10(3)e168-e177.

Life on Hemlibra

Before administering Hemlibra you should read the package leaflet contained in the box with your medicine, the guide for patients/carers and patient alert card your doctor or nurse will have given to you, or the person who looks after you.

It’s very important you and the person who looks after you talk to your doctor about what to do if you have a bleed when you are taking Hemlibra.

what happens if i have a bleedfrequently asked questions

Want to learn more?

Check out our helpful videos and guides in one place!

View videos and guides