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Welcome

Information and resources for people with haemophilia A (congenital factor VIII deficiency) with inhibitors to factor VIII who have been prescribed Hemlibra® (emicizumab)
WHAT IS HAEMOPHILIA A?
CHRIS’
STORY
Opinions expressed in this video are based on the personal experience of the patient. Your own treatment experience may differ. Always follow advice from your haemophilia care team and speak to them about questions or concerns you may have regarding your health and treatment or that of someone you care for.

Your stories

Chris has severe haemophilia A which impacted his childhood. He describes the challenges of managing his condition and how this made him feel.

Watch Chris share his experience of treatment with Hemlibra and what impact this has had on his lifestyle.

Your guide to Hemlibra

You have been prescribed Hemlibra to help manage your haemophilia A with inhibitors. On this website, you’ll find information to help you get the most from your Hemlibra treatment.

Before administering Hemlibra you should read the package leaflet contained in the box with your medicine, the guide for patients/carers and the patient alert card your doctor or nurse will have given to you.

HOW DOES HEMLIBRA WORK?

Getting to know Hemlibra

As you begin a treatment, change can feel both exciting and a little daunting. It may take a while for you to get used to your routine with Hemlibra. This website is designed to help you understand your condition and how Hemlibra can help you manage it.

Hemlibra is not a cure for haemophilia A. It is a prophylactic treatment used to prevent or reduce the frequency of bleeds.

TAKING HEMLIBRA

Life on Hemlibra

It is very important you know how to manage a bleed while you are taking Hemlibra. If you have a bleed, do not take extra Hemlibra.
Hemlibra increases the ability of your blood to clot. If you have a bleed, the dose and choice of bypassing agent may not be the same as the one you used before using Hemlibra.
What happens if i have a bleedFREQUEntly asked questions
Useful resources

View all our useful resources in one place, from booklets and guides to videos and animations